The Off-patent Drugs Bill
The George Pantziarka TP53 Trust has been a supporter of the Off-patent Drugs Bill for some time – writing in support of the Bill and adding our name and logo to a number of public interventions in favour of the … Read More
Crowdfunding and cancer
Colorectal cancer is not normally considered one of the core ‘LFS cancers’ – in fact less than 3% of LFS cancers are colorectal – yet we have gladly out our name to supporting an innovative trial in bowel cancer in … Read More
Why the new website?
The original website served us well when we first started the George Pantziarka TP53 Trust, it gave us a web presence, it hosted the forum and allowed people to find and contact us. But the site was never great to … Read More
We need early diagnosis of LFS – not just cancer
There is a recurring theme in many stories from LFS families who contact the TP53 Trust. They describe the moment when someone in the family is finally diagnosed with LFS – at that moment things start to make sense. There has usually … Read More