We do not know how many people with Li Fraumeni Syndrome (LFS) there are in the UK. However, as of July 25th 2023, we do know that there are 9,030 people in the UK with Lynch Syndrome, another cancer predisposition … Read More
Newsletter #4 George Pantziarka TP53 Trust – Newsletter We wish all of our friends, families and supporters a very Happy New Year! Liquid Biopsies Early cancer detection is the primary aim in the management of Li Fraumeni Syndrome – early … Read More
Early cancer detection is the primary aim in the management of Li Fraumeni Syndrome – early detection is key to successful cancer treatment. Currently the main mechanisms for this early detection are regular surveillance using whole-body MRI (WBMRI), physical checkups … Read More
Survey now closed.
Newsletter – George Pantziarka TP53 Trust Charity Ball! Molly McQueen, with her mum Katie, organised a spectacular charity ball in Kilmarnock, Scotland to support the Trust and another cancer charity. It was a great opportunity to spread the word on … Read More
Newsletter – George Pantziarka TP53 Trust Ultra Marathon Runners As we kick off this quarter’s newsletter, there’s really only one place we can start. Everyone at the George Pantziarka TP53 Trust would like to send our congratulations and thanks … Read More
Sarcomas are some of the ‘core’ cancers associated with Li Fraumeni Syndrome (LFS) – including soft tissue sarcomas like rhabdomyosarcoma in children or leiomyosarcoma in adults, and bone sarcomas such as osteosarcoma. While rare in the general population, sadly these … Read More
Newsletter #1 George Pantziarka TP53 Trust Newsletter Quarterly Newsletter The MILI Trial The long-awaited MILI (Metformin In Li Fraumeni Syndrome) trial is almost ready to start recruiting! This is a world-first trial that will test whether a drug used to … Read More