One of the most contentious issues for people dealing with Li Fraumeni Syndrome is screening – the active program of checking for cancers before any symptoms become evident. The idea is simple enough – if we can catch cancer before … Read More
A question that crops up again and again is how many people with Li Fraumeni Syndrome (LFS) are there in the UK? While it’s an easy question to ask, it’s not so easy to find an answer. The fact is … Read More
As part of our fund-raising strategy we’ve recently signed up to a service called Give As You Live. It’s a simple idea – basically it’s a web site which you use to access your favourite online shopping sites. Each time … Read More
One of our big research interests at the George Pantziarka TP53 Trust is on active measures to reduce the risk of cancer in people with LFS. To date I have published two papers setting out the biological rationale suggesting that … Read More
The George Pantziarka TP53 Trust has been a supporter of the Off-patent Drugs Bill for some time – writing in support of the Bill and adding our name and logo to a number of public interventions in favour of the … Read More
Colorectal cancer is not normally considered one of the core ‘LFS cancers’ – in fact less than 3% of LFS cancers are colorectal – yet we have gladly out our name to supporting an innovative trial in bowel cancer in … Read More
The original website served us well when we first started the George Pantziarka TP53 Trust, it gave us a web presence, it hosted the forum and allowed people to find and contact us. But the site was never great to … Read More
There is a recurring theme in many stories from LFS families who contact the TP53 Trust. They describe the moment when someone in the family is finally diagnosed with LFS – at that moment things start to make sense. There has usually … Read More