Home Forums Announcements New LFS leaflet

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  • #496
    Pan
    Keymaster

    Just a quick post to let you all know that we’ve completely updated our introduction to LFS leaflet. A big thank you to Lara for working on this. While we’ve got the PDF online here:

    [url=http://www.tp53.co.uk/images/files/What%20is%20LFS%20leaflet.pdf]http://www.tp53.co.uk/images/files/What%20is%20LFS%20leaflet.pdf[/url]

    Our plan is to send printed copies of this to all of the NHS Genetic Testing centres so that it’s on hand for when people first get diagnosed.

    #499
    PaulW
    Participant

    Great job on the new leaflet Pan, very clear, concise and still comprehensive enough to give people a good start on understanding LFS and its implications.

    Paul.

    #504
    SKH
    Participant

    That’s great – well done for putting that together Pan. Although I would say that the testing is not quite as simple as this – 2 years since I first saw a gp about the potential and still we are only marginally further forward. They still have not carried out the test as the geneticist is reluctant- says it can open a can of worms for all the extended family. It goes on.
    SKH

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