We held our annual event for people with Li Fraumeni Syndrome and related conditions on September 11th – at the Conway Hall, Red Lion Square, London. It was great to welcome such a wide-ranging audience – people with LFS, family and friends, researchers and clinicians. The presentations are all included below. We are currently working on the videos of the presentations to upload to our YouTube channel – the videos will be linked from here too when they are ready.
Dr Helen Hanson: Update on NHS Screening Protocol
Dr Sarah Blagden: The MILI Trial – Metformin in LFS
Kate Fulton: LFS – Psychology and living with uncertainty
Pei Lim: <Presentation forthcoming>
Pan Pantziarka: Frauds, Fakes and Miracle Cures
Greg Harper: <Presentation forthcoming>