I agree. I’m trying but my brother has to take the next step – and that’s hard for him – and it’s a bit out of my hands. No one has mentioned signify trial but I read about it. If we could just get that definite test sorted then we could start. Feels like I’m in limbo.
South west. Took a year for me to just get my first appointment last week. My brother lives in another area and has to start from the beginning so could be another year apparently.
Thanks Pan. Yes it’s all my side of the family. 12 members with cancer – two survivors – ages spread from 13 – 55. I may have to wait for a year for waiting times for my brother to be tested and then me, to know. It will be a long year.
Sally
Thank you Karen. The genetics dept have already ‘discharged’ me so am feeling a bit high and dry with nowhere to go. I will try and ring them Monday to double check.
Sally
Well I have just joined as newly found out we have LSF and am hugely relieved to find somewhere to post. Once I am over the shock I’m sure I can help out here in some way. I know a lot about charities and fundraising. Please look at my question I have posted re offspring.
Thanks
