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  • #405
    sunny
    Participant

    I am in Melbourne’s Peter Mac cancer Centre,seeing experienced sarcoma oncologist soon.

    Surinder

    #406
    sunny
    Participant

    Horrible experience with chemotherapy.

    Surinder

    #408
    PanP
    Keymaster

    Is it the doxorubicin?

    #409
    PanP
    Keymaster

    Is it the doxorubicin?

    #410
    SKH
    Participant

    Thinking of you Surinder. I’ll keep looking out for messages if you want to leave more.
    Sally

    #414
    sunny
    Participant

    doxorubicin and Isophosphamide plus all other medication to protect bladder,nausea and so on.Also have to start isonised and pyroxin as preventative measure to stop tuberculosis comeback.

    Surinder

    #417
    SKH
    Participant

    Tough mixture Surinder. Have you any family around?
    Sally

    #422
    sunny
    Participant

    It’s feeling bit better now after few days,but have to do it all over again and who knows how many times but hoping it will work.Yes I am with my family all these days,have beautiful wife and two young daughters.

    Surinder

    #423
    SKH
    Participant

    I’m sure they can give you strength
    Sally

    #425
    sunny
    Participant

    Paul I wish you all the very best for your new treatment.

    Surinder

    #426
    sunny
    Participant

    somehow handled 2nd round of chemotherapy,not looking forward for third one.

    Surinder

    #427
    PanP
    Keymaster

    Hang on in there, Surinder. When do you have your next set of scans?

    Pan

    #428
    sunny
    Participant

    My oncologist saying to have scan after 3 cycles but I will insist on having it now.If scan shows some shrinkage or any response at all then I think it worth to put up with another cycle . Any suggestions please.

    Surinder

    #429
    PanP
    Keymaster

    Surinder, scanning after 3 cycles is standard for the treatment you’re on. It may well be that it your oncologist will be better able to interpret the scan result because he/she knows what to expect after three cycles. This may well be important in terms of classifying the response as complete/partial/stable/progressive and in terms of disease staging. If the norm is to stage after 3 cycles then doing it sooner might be something your oncologist is unhappy doing.

    Personally, I think that if your tumour is responding to treatment then that response will be there after two cycles. I suspect though that your oncologist will resist scanning early…

    Pan

    #430
    sunny
    Participant

    Thank you Pan,my short term worry is that I am having night sweats and some symptoms of tuberculosis (may be because of the hormone injection they give me after chemo cycle to boost white blood cells). I am on isoniazid already for TB.
    I am ready to undergo another cycle but it just take ten days out of my life and I wanted to be sure that it is giving me some benefit .
    Also if I may ask what cancers this medication may induce to people with Li Fraumeni .
    Can MRI of liver can give us any information at all.
    Surinder

Viewing 15 posts - 16 through 30 (of 74 total)
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