Hi Patti. First off let me say a big welcome. You are not alone – though it can feel that way sometimes. There’s a lot of information to take in at the beginning – so take things slowly. We’ve got a lot of info on the site which should be useful – and if there’s anything unclear or missing then please go ahead and ask.
You obviously also need to get your children tested as soon as possible. By the way, I think you’ve got a really sharp doctor for recommending you get tested.