Home › Forums › Introductions › My story

Viewing 15 posts - 16 through 30 (of 75 total)
1 2 3 4 5
  • Author
    Posts
  • January 21, 2014 at 3:38 am #404
    sunny
    Participant

    (When I reviewed this case I specifically did so to make sure that it was not a GIST and I am very confident that this is a true leiomyosarcoma based on both the morphology and also the immunohistochemical profile.

    The tumour demonstrated negative staining for cKIT and DOG1 and positive staining for desmin which excludes the possibility of GIST and given the morphology confirms the diagnosis of leiomyosarcoma.)
    Above is the part of email from my pathologist.
    I have no idea what they gonna give me.I will keep you posted once I find out.

    Surinder

    January 22, 2014 at 1:01 am #405
    sunny
    Participant

    I am in Melbourne’s Peter Mac cancer Centre,seeing experienced sarcoma oncologist soon.

    Surinder

    January 27, 2014 at 1:40 am #406
    sunny
    Participant

    Horrible experience with chemotherapy.

    Surinder

    January 28, 2014 at 12:33 am #408
    PanP
    Keymaster

    Is it the doxorubicin?

    January 28, 2014 at 12:33 am #409
    PanP
    Keymaster

    Is it the doxorubicin?

    January 28, 2014 at 1:40 am #410
    SKH
    Participant

    Thinking of you Surinder. I’ll keep looking out for messages if you want to leave more.
    Sally

    January 29, 2014 at 4:04 am #414
    sunny
    Participant

    doxorubicin and Isophosphamide plus all other medication to protect bladder,nausea and so on.Also have to start isonised and pyroxin as preventative measure to stop tuberculosis comeback.

    Surinder

    January 31, 2014 at 1:17 am #417
    SKH
    Participant

    Tough mixture Surinder. Have you any family around?
    Sally

    February 1, 2014 at 7:01 am #422
    sunny
    Participant

    It’s feeling bit better now after few days,but have to do it all over again and who knows how many times but hoping it will work.Yes I am with my family all these days,have beautiful wife and two young daughters.

    Surinder

    February 1, 2014 at 7:31 pm #423
    SKH
    Participant

    I’m sure they can give you strength
    Sally

    February 5, 2014 at 12:24 pm #425
    sunny
    Participant

    Paul I wish you all the very best for your new treatment.

    Surinder

    February 16, 2014 at 6:03 am #426
    sunny
    Participant

    somehow handled 2nd round of chemotherapy,not looking forward for third one.

    Surinder

    February 18, 2014 at 12:20 am #427
    PanP
    Keymaster

    Hang on in there, Surinder. When do you have your next set of scans?

    Pan

    February 20, 2014 at 1:10 pm #428
    sunny
    Participant

    My oncologist saying to have scan after 3 cycles but I will insist on having it now.If scan shows some shrinkage or any response at all then I think it worth to put up with another cycle . Any suggestions please.

    Surinder

    February 21, 2014 at 4:49 pm #429
    PanP
    Keymaster

    Surinder, scanning after 3 cycles is standard for the treatment you’re on. It may well be that it your oncologist will be better able to interpret the scan result because he/she knows what to expect after three cycles. This may well be important in terms of classifying the response as complete/partial/stable/progressive and in terms of disease staging. If the norm is to stage after 3 cycles then doing it sooner might be something your oncologist is unhappy doing.

    Personally, I think that if your tumour is responding to treatment then that response will be there after two cycles. I suspect though that your oncologist will resist scanning early…

    Pan

  • Author
    Posts
Viewing 15 posts - 16 through 30 (of 75 total)
1 2 3 4 5
  • You must be logged in to reply to this topic.