I think the above is worth taking a look at if you have not yet come across it. It is a video of the workshop held in America end of 2010 and has the world wide experts talking about the condition. It is extremely detailed and is over 5 hours long but it does cover everything you may want to know about Li-Fraumeni and not only includes the research experts but some of the families with the condition as well. You can scroll through it if you wish, I watched it in 3 sections as it is so long.
The web site to access the video is http://videocast.nih.gov/summary.asp?live=9741