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Viewing 15 posts - 16 through 30 (of 35 total)
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  • April 29, 2014 at 1:42 am in reply to: Tp53 testing #448
    SKH
    Participant

    Hi MT
    Welcome to the forum. It always seems to take a long time – it took me 12 months to find out I am at risk and I still haven’t even been tested yet (16 months on) because another family member is on a very long waiting list too and they must be tested first.

    I wish we could speed up these processes!
    SKH

    April 29, 2014 at 1:37 am in reply to: My story #447
    SKH
    Participant

    It’s incredibly tough Surinder. Keep finding the courage to fight it. It’s good that’s there is shrinkage in one tumour and I hope the others will do the same.

    SKH

    February 1, 2014 at 7:31 pm in reply to: My story #423
    SKH
    Participant

    I’m sure they can give you strength
    Sally

    January 31, 2014 at 10:07 pm in reply to: Ideas for what we do next? #421
    SKH
    Participant

    I’d like to see it when it comes out. Have you a link to the other one you published? I’ll have a look around here as you might have put it up
    S

    January 31, 2014 at 1:32 am in reply to: Bath Half Marathon #419
    SKH
    Participant

    Done!

    January 31, 2014 at 1:31 am in reply to: Ideas for what we do next? #418
    SKH
    Participant

    What was the feedback for the bid? I didnt know about Metformin – can you expand? I could probably input into a bid to a degree (time permitting).

    Also can you also expand on the active measures you refer to? Is this potentially part of a wider campaign potential?
    Sally

    January 31, 2014 at 1:17 am in reply to: My story #417
    SKH
    Participant

    Tough mixture Surinder. Have you any family around?
    Sally

    January 28, 2014 at 1:41 am in reply to: Hello world #411
    SKH
    Participant

    Hi there.

    January 28, 2014 at 1:40 am in reply to: My story #410
    SKH
    Participant

    Thinking of you Surinder. I’ll keep looking out for messages if you want to leave more.
    Sally

    January 18, 2014 at 12:31 am in reply to: My story #399
    SKH
    Participant

    That’s incredibly tough Surinder. I’m so sorry to hear this.
    Thinking of you

    January 7, 2014 at 2:17 am in reply to: My story #395
    SKH
    Participant

    The very best of luck Surinder

    January 7, 2014 at 2:11 am in reply to: The wonderful SIGNIFY #394
    SKH
    Participant

    Can SIGNIFY be for children as well as adults?

    December 28, 2013 at 2:55 am in reply to: Question re offspring of LSF #385
    SKH
    Participant

    We can talk about it. I think I emailed my email address to you.

    December 13, 2013 at 1:53 am in reply to: Question re offspring of LSF #380
    SKH
    Participant

    I have asked the same question. The consultant said it wouldn’t make any difference. Have you moved any further with the charity set up Pan?

    December 11, 2013 at 8:57 pm in reply to: Is IVF safe? #374
    SKH
    Participant

    I saw an article on a couple called Halfords who live in Coleford in Somerset who had IVF with embryo screening at the same time. PGD I think it’s called. Worth looking at? They have had a healthy baby now
    Sally

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